World Milksharing Week 2012 Blog Carnival!

Everyone loves a Carnival. This year Trevor MacDonald is hosting the World Milksharing Week 2012 Blog Carnival over on his "Milk Junkies" site. Do you have a blog in you about milksharing? Connect with Trevor, write a blog, he'll host it on his site, you'll host it on yours, you'll get to put up this Carnival Participants badge on your site, there will be links to other blog posts and it'll be one big happy.... carnival!

Participants:

Milk-Sharing: Safe Infant Feeding and Being a Human - Sustainable Mothering - Jake Markus 

The Lorax and Other Milksharing stories - MatriciativismoenelsigloXXI Jesusa Ricoy-Olariaga

Winning the milk lottery - PhD in Parenting, Diana West, BA, IBCLC

Scared Milk-less - Peaceful Parenting - Lisa Van den Hoven

Overcoming Difference Through Milksharing - Milk Junkies, Trevor MacDonald

Biomedical Ethics and Peer-to-Peer Milksharing - Human Milk News, Karleen Gribble 

A Story of Peace and Healing - Normal, like breathing, Diana Cassar-Uhl

Milksharing and La Leche League - Feed the Baby LLC, Laura Spitzfaden

Supporting Families in Milksharing as an International Board Certified Lactation Consultant -  Nourish Breastfeeding Support, Amber Rhotan McCann 

"I wish I'd Known About Milksharing When..." - Complete Wellness Concept, Dinnae Galloway

Waiting for Milk Banks: A Matter of Life or Death - Human Milk News, Jodine Chase 

Powerful Images: Supplementing with Donor Milk - DoubleThink, Paa.la, Paala Anderson Secor

What is World Milksharing Week - Dinnae Galloway

Human Milk News is featuring a milksharing story every day leading up to World Milksharing Week 2012 (Sept. 24-30)

Loralea and Emmalea

Loralea conceived her daughter Emmalea while undergoing chemotherapy for cancer. Yet, Emmalea was born healthy and Loralea breastfed her until the news of her cancer recurrence when Loralea was just two months old. She need more chemotherapy but was devastated to realize harmful chemotherapy chemicals would transfer through her breastmilk to her daughter. She would be unable to breastfeed and couldn't even continue her breastfeeding relationship by feeding Emmalea with an at-breast supplementer. She was heartbroken. Then she learned about milksharing from her lactation consultant and put out a request for donor milk.... read what happened next.

Loralea and Emmalea’s Story ~ Chemo = No SNS, TX, USA | August 25, 2012 
A year and a half ago I was diagnosed with stomach and uterine cancer. As if that wasn’t hard enough news to swallow, during the following days I learned that that my ability to have children after my treatment was going to be next to impossible. My gynecologist approached me about the possibility of freezing my eggs, but my oncologist was vigilant about starting cancer treatments as soon as possible, noting that the egg freezing process can sometimes be a very lengthy process. Fortunately, I’d been blessed with a son, James, who was nearing 5-years-old at the time, so I comforted myself by the fact that I had him, and nothing was really lost....more

Toronto's pending milk bank sparks controversies over delays leading to baby deaths, and who should get the milk

 

Toronto is finally getting a donor human milk bank, and it is not without controversy. Questions have been raised over how many babies have died in the six years it has taken for the milk bank to open, and now a family in Ottawa wants the milk bank to provide donor human milk for healthy, term babies as well as the premature babies it intends to serve.

The milk bank is scheduled to open this fall, six years after it was first proposed and a year after the Toronto government committed $1.2M towards it, reports the Toronto Star. The Star doesn't pull any punches: donor human milk could have saved the dozens of babies who died from necrotizing enterocolitis (NEC) while the milk bank was in the planning and research stages. The Star notes a milk bank in Calgary was up and running just 16 months after it was first proposed. The Star's story has triggered an opinion column in one of Canada's national dailies, the National Post, slamming the Ontario health care system for taking so long to establish the facility. Meanwhile, CBC reports, the mother of a healthy term infant in Ottawa who was unable to breastfeed arranged and paid for donor milk from another milk bank. She wants the Toronto milk bank to serve families with healthy children who can't receive their mothers' own milk, as well as the very low birth weight preemies and babies with bowel disorders the bank intends to target. CBC quotes Ottawa neonatologist Brigitte Lemyre who says, essentially, donor milk is a scare resource and the sickest babies should receive priority. CBC reports Lemyre also says there is no evidence donor milk benefits healthy babies. 

Calgary Mothers' Milk Bank's Facebook photo album tells the story - from equipment move-in day March 1 to the first official donation March 18 and the first delivery of pasteurized donor human milk to the Foothills Hospital on April 13 - 6 weeks.

The baby deaths in the years it took for Toronto's milk bank to get off the ground are a tragedy and the resulting controversy is likely to overshadow the issue of who should receive donor milk once milk banks are re-established across Canada. 

The delay in establishing the Toronto milk bank was one of the catalysts for the creation of milksharing communities on Facebook two years ago. Canadian breastfeeding advocate Emma Kwasnica and her network of moms from around the world decided to take matters into their own hands. Mothers were clamouring to donate, and were frustrated at being told there was no demand for their extra milk - instead of pouring it down the drain, they started offering it to families in need in their communities. They turned to the networking solutions of their generation to match families in need with mothers who had extra milk, and the resulting global Facebook milksharing network made news in the fall of 2010. 

Some health care professionals, concerned about possible risks of milksharing and realizing increased pressure on milk banks from NICUs was making less milk available to babies in the community, found themselves assuring mothers of healthy infants that infant formula is just fine for their babies. This of course is contrary to the messaging breastfeeding advocates have worked hard for decades to get out to the general public. Breast is not best, it's normal, and formula is not fine, it comes with increased risks for all babies, with of course the sickest being at most risk. 

One concern at the time was that the popularity of milksharing might reduce the number of moms who donate to milk banks. That concern appears to be unfounded, but when there is a shortage of donor milk in hospital freezers, or when policy glitches or funding issues keep the sickest preemies from receiving donor milk, emotions naturally run high.

On the eve of WorldMilksharing Week (Sept 24-30) USA Today explores the rising popularity of both milk banks and milksharing. Operator of the long-standing milk bank in San Jose, California, Pauline Sakamoto, says HMBANA milk banks distributed 2.1 million ounces in 2011, up from 1.5 million in 2009. And more milk banks are on the way -  Kansas City, Orlando, Portland, Missoula will all be getting milk banks soon. In Canada – a new milk bank collection depot is set to open in Edmonton, B.C.'s milk bank system is expanding, and efforts are underway to open milk banks in Saskatchewan and New Brunswick. Sakamoto and HM4HB's Kwasnica both note there is no rivalry between milksharing and milk banking, and acknowledge each practice brings different benefits and risks to a community.

As donor human milk is embraced both in the community and by neonatologists and health care authorities, more families will turn to milksharing, and more milk banks will open. In each community questions will arise:

• Why did it take so long to re-establish our network of milk banks after the AIDS panic in the 80s, and how many babies died during this time?
• Is there enough donor milk for all who want it? 

I hope we will be able to move away from kneejerk responses born of concern over safety and scarcity. We need to acknowledge and applaud the success that has come from decades of hard work on the part of breastfeeding advocates who have clearly convinced families and health care professionals of the value of donor human milk. We need to explore the issues that have arisen and develop thoughtful and sound, evidence-based policies to support the use of all donor human milk. 

It's time for stakeholders in North America - families who need donor milk, moms with milk to donate, advocates who support, protect and promote breastfeeding, health care providers, hospital administrators, policy makers, and anyone else with the authority and capacity to restore and improve the system - to come together. It's time we had appropriate policies and processes in place for funding and support for families who wish to use donor human milk when mother's own milk isn't available. Babies are dying in NICUs - and mothers are still pouring excess milk down the drain. 

The World Milksharing Week 2012 Blog Carnival is hosted by Milk Junkies blogger Trevor MacDonald.

Participants:

Milk-Sharing: Safe Infant Feeding and Being a Human - Sustainable Mothering - Jake Markus 

The Lorax and Other Milksharing stories - MatriciativismoenelsigloXXI Jesusa Ricoy-Olariaga

Winning the milk lottery - PhD in Parenting, Diana West, BA, IBCLC

Scared Milk-less - Peaceful Parenting - Lisa Van den Hoven

Overcoming Difference Through Milksharing - Milk Junkies, Trevor MacDonald

Biomedical Ethics and Peer-to-Peer Milksharing - Human Milk News, Karleen Gribble 

A Story of Peace and Healing - Normal, like breathing, Diana Cassar-Uhl

Milksharing and La Leche League - Feed the Baby LLC, Laura Spitzfaden

Supporting Families in Milksharing as an International Board Certified Lactation Consultant -  Nourish Breastfeeding Support, Amber Rhotan McCann 

"I wish I'd Known About Milksharing When..." - Complete Wellness Concept, Dinnae Galloway

Waiting for Milk Banks: A Matter of Life or Death - Human Milk News, Jodine Chase 

Powerful Images: Supplementing with Donor Milk - DoubleThink, Paa.la, Paala Anderson Secor

What is World Milksharing Week - Dinnae Galloway

News coverage, Toronto Milk Bank 

Ontario finally getting a breast-milk bank  
Toronto Star, August 31, 2012
Six years after it was first proposed for Ontario, a breast milk bank that could have saved dozens of vulnerable babies is still months away from completion. Vancouver has had a facility for more than three decades, and Calgary opened one in April after only 16 months of planning....more

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Mother wants donated breast milk from Toronto bank - Provincial milk bank to provide donated breast milk to ill newborn babies at Ontario hospitals
CBC News, Sept 5, 2012
Some parents want a new provincial breast milk bank to do more than provide donated breast milk to unhealthy babies, as it has proposed. The brand new provincial milk bank is set to open in January at Toronto's Mount Sinai Hospital in partnership with the Hospital for Sick Children and Sunnybrook Health Sciences Centre. ... more

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FULL COMMENT
Matt Gurney: Ontario’s healthcare system dithers while 

babies die 

Matt Gurney | National Post | Sep 4, 2012 10:11 AM ET | Last Updated: Sep 4, 2012 10:16 AM ET

There was an absolutely astonishing article over the weekend on the development of a new Ontario breast milk bank. The facility, to operate out of a Toronto hospital,
will house properly screened donations of human breast milk for babieswhose own mothers are, for whatever reason, unable to nurse their children. A facility such as this will keep babies alive and save taxpayers money.
Yet it has been stuck in limbo for no less than six years....more

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Use of mother's milk banks, milk-sharing skyrockets 

By Brian Shane, USA TODAY, Sept 2, 2012 

This time last year, Mother's Milk Bank in San Jose may have been able to send a month's worth of donated breast milk to hospitals in Alaska or Hawaii in a single shipment. Now many of those same hospitals can only get their milk by the week.... more

Woman donates to BC's milk bank and to local family

Human Milk News is featuring a milksharing story every day leading up to World Milksharing Week 2012 (Sept. 24-30)

This is the story of Olive Chan, who wasn't able to breastfeed but continued to pump to provide her baby with milk. She wound up with more than she could use and donated from her overflowing freezer to a local family, and to the BC milk bank.

The Story of My Milk: How I Stumbled into Feeding a Hundred Babies ~ Donor (Canada)
September 7, 2012 | Filed under: stories and tagged with: WMW 2012By Olive Chan
Being the idealist that I am, before I had Alena, I imagined our feeding times to be like this: myself as a gentle, nurturing mother looking affectionately at the sweet babe suckling at my breast as we nestled together in the rocking chair. A week after we brought her home, that picture could not be farther from reality. Well, everything except for the rocking chair. It was 6am in the morning, she was thrashing about and crying, I was hysterical and crying, and milk was everywhere but in her tummy.
Thus began the story of my breastmilk and how I stumbled into feeding a hundred babies....more